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Thread: Domperidone x 1 week with no results yet... am I alone?

  1. #1

    Unhappy Domperidone x 1 week with no results yet... am I alone?

    My daughter is 10 weeks old and I have only a partial supply. I successfully nursed our first 2 children exclusively, so this is a new problem. I have been having to supplement with formula since the beginning.

    I've done everything, pump like crazy + nurse around the clock, fenugreek, blessed thistle, marshmallow root, thyroid check (normal on replacement), chiropractic for my back pain. My daughter's clavicle was fractured during birth and she has a suspected sternocleidomastoid muscle injury that seems healed, but it definitely affected her sucking reflex. She seems just now "normal" in sucking ability, so that's likely why our supply is in the toilet, even though I've done everything under the sun to increase my supply. At the advice of several lactation consultants, I started domperidone. It seems like my last-ditch effort to normalize this breastfeeding relationship.

    I love nursing and I don't want things to be this way I'm grateful for every drop of milk we have, but having successfully breastfed two other kiddos for over a year apiece, I'm bummed about this.

    My issue is this: I've been on domperidone for a week with no results. I do understand that it can take some time. I want to hear your experiences! Hoping for some encouragement.

  2. #2
    Join Date
    Apr 2014
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    693

    Default Re: Domperidone x 1 week with no results yet... am I alone?

    It can take up to 2 weeks.... mind me asking what dose you are on?

  3. #3
    Join Date
    Apr 2014
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    693

    Default Re: Domperidone x 1 week with no results yet... am I alone?

    Also is baby's latch etc ok, has she been assessed for feeding issues such as TT or LT?

  4. #4
    Join Date
    Apr 2014
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    693

    Default Re: Domperidone x 1 week with no results yet... am I alone?

    Oh wait I re - read. If baby's suck has improved hopefully that will help stimulate your supply. Have you investigated speech therapy to improve suck? It can be avaliable on insurance in the US at least.

  5. #5

    Default Re: Domperidone x 1 week with no results yet... am I alone?

    I am original poster.

    Thanks for your replies!

    I have now been on domperidone for 3 weeks with no detectable improvement. I am still hoping that I'm one of those occasional moms that Dr. Newman talks about on his domperidone publication that takes 4 weeks to improve. I had a prolactin lab drawn this week and am waiting for results. As I understand it, if my prolactin level is normal to high, then dom probably won't work. I'm taking 40 mg TID. I started at the recommended 30 mg TID but wasn't seeing results, so I increased it within Dr. Newman's parameters. I can't go up any higher.

    This whole mess is a mystery to me. My daughter was evaluated by 2 ENTs (one being a pediatric specialist) for tongue-tie, and they both concluded that she does not have it. The IBCLCs at our hospital suggest to me that she might be posteriorally tongue-tied, but I asked the ENT and he said no (and he does clip tongues in our area). Her sucking seems normal now to me, but when I pump after feedings, there is consistently 15-20mL. If I EP, usually once per day, output is 1.5oz every 3 hours or so. Between nursing and pumping, I have 7 sessions per day (she eats 6 times and I try to get an extra pump in before bed, or I lump two pumpings into a power pump session). Nothing is helping. I'm bummed. I refuse to quit. I nursed my 2 older daughters for a year each and I just really believe in breastfeeding! Still, this is really hard to live with day-to-day, and I'm afraid to drop any pumping sessions, though I'd really love to.

    Thankfully, my baby likes to nurse and doesn't seem deterred by the low supply. If my supply isn't going to improve, I'm looking for ways to make it easier to live with the long-term pumping after feedings. I'm feeling a little nuts at the moment! I feel chained to the pump and it's taking a lot of joy out of breastfeeding.

  6. #6
    Join Date
    Apr 2014
    Posts
    693

    Default Re: Domperidone x 1 week with no results yet... am I alone?

    Hey again, is baby now feeding on cue and not needing supplements?

    Pumping isn't a good measure of supply. Many mums don't respond to a pump but have enough milk. That said what you are pumping looks normal to me. You wouldn't expect to get much/anything straight after a feed and 1.5oz is a normal yield at other times.

    If baby no longer needs supplements thrn surely the dom IS working?

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