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Thread: Intra Ductal Papilloma

  1. #1

    Default Intra Ductal Papilloma

    Hi all, it's me again.. following my question earlier on bloody milk and painful breast, I decided to see my ob-gyn because the pain was getting worse. He scheduled me for an ultrasound scan today. The diagnosis is intra-ductal papilloma. I googled it but I haven't found any case related to breastfeeding. I'm so worried now if this is something serious because I read that it might mean I have increased risk of breast cancer. I'm waiting for my appointment with a breast specialist, but I'm getting so anxious now. My milk supply has dropped quite badly these past few days, plus the pain is rather bothering me. I'd like to know if anyone here has heard or experience similar situation.. then at least I know I am not all alone.. I thought I could breastfeed my son for at least 2 years.. or for as long as he wanted to.. but now I am so discouraged that I can do it. I am not ready to wean him, not so soon...
    My lil cookie monster arrived on 10 november 2009. Weight: 3.67 kg Length: 50cm.

    Mommy can't with machine but happily do it manually with hand :grin

    Lil cookie monster latest favourite menu:
    whole wheat bread for breakfast
    Oatmeal, dory fish and green veggies for lunch/dinner

  2. #2
    Join Date
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    Default Re: Intra Ductal Papilloma

    Mama:

    I don't have any personal experience with this, but I know it must be so scary. Keep your chin up! Most of what I read online says that intraductal papillomas tend to be benign. I wouldn't jump to any conclusions until you talk to the breast specialist. and
    Coolest thing my big girl said recently: "How can you tell the world is moving when you are standing on it?"
    Coolest thing my little girl sang recently: "I love dat one-two pupples!"

  3. #3
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    Default Re: Intra Ductal Papilloma

    Quote Originally Posted by @llli*mommal View Post
    Mama:

    I don't have any personal experience with this, but I know it must be so scary. Keep your chin up! Most of what I read online says that intraductal papillomas tend to be benign. I wouldn't jump to any conclusions until you talk to the breast specialist. and
    I don't have personal experience with this diagnosis, but I was told I had a very "suspicious" mass in my breast and got a biopsy when Joe was only three months old. It turned out to be benign (in my case, cystic changes), and we are STILL breastfeeding, at 18 months! You can get through this! I know how scary it is. Please keep us posted. s


    You can call me JoMo!

    Mom to baby boy Joe, born 5/4/09 and breastfed for more than two and a half years, and baby girl Maggie, born 7/9/12.

  4. #4

    Default Re: Intra Ductal Papilloma

    Intraductal papillomae are not malignant, and you can breastfeed with them. I have not read that they increase the risk of malignant breast cancers. You may want to have it removed, however for comfort. Again, not a reason to wean. It does sound as if it is painful for you--sorry to hear that.

  5. #5

    Default Re: Intra Ductal Papilloma

    i just came back from doc's appointment yesterday. Saw two doctors actually but i was not satisfied with the first so i went to this doc who did tumor surgery for my aunt.
    had a great consultation and it was such a huge relief to me! Thank God Intra ductal papilloma can happen when breastfeeding and it is nothing to worry about. the pain can be bad but there is nothing we can do except taking analgesic and anti inflammatory drugs like paracetamol and voltaren until the papilloma is removed. the removal procedure is fast, it will only take about 30 mins. First step is to have a ductography, a scan of the duct to find out where the papilloma is. but of course all the procedures can only be done after i wean.Doc told me to nurse as long as we can and if the pain goes really really bad then we can consider weaning and have it removed.

    Btw Thank you for the encouragement i am back on stage now, my milk supply is getting better too!
    My lil cookie monster arrived on 10 november 2009. Weight: 3.67 kg Length: 50cm.

    Mommy can't with machine but happily do it manually with hand :grin

    Lil cookie monster latest favourite menu:
    whole wheat bread for breakfast
    Oatmeal, dory fish and green veggies for lunch/dinner

  6. #6
    Join Date
    Mar 2010
    Location
    Northern Cal.
    Posts
    4,984

    Default Re: Intra Ductal Papilloma

    I know from my own experience that even having breast surgery does not necessarily require that you wean entirely, although the risk of leaking milk from the surgery site is higher if you don't. With my biopsy, I did have to almost entirely wean off the side with the lump so that the incision could heal, and I also had to apply pressure bandages several times a day to keep pressure on the incision so that milk wouldn't constantly leak out, but after doing this for a couple of weeks, the incision healed and I relactated on that side (which is relatively easy to do if you never stop nursing on the other side). It was a rough couple of months, don't get me wrong, but it can be done.

    I believe this would be much easier for me to do now that I'm nursing a toddler - I did it before when Joe was four months old, EBF, and my supply was far higher (I had OS, actually). Now he just nurses a handful of times a day - I might not have to wean off one side at all.

    ETA: Your doctor might want you to wean so that he can "see" what's going on a little better, or for some reason related to intra-ductal papillomas that I'm not familiar with - be sure to ask.

    You could probably help him see better on the U/S by just weaning off that side a couple weeks before the surgery. Anyway, you might have more options than you know. I'm really glad you got good news!
    Last edited by @llli*joe.s.mom; November 10th, 2010 at 02:48 PM.


    You can call me JoMo!

    Mom to baby boy Joe, born 5/4/09 and breastfed for more than two and a half years, and baby girl Maggie, born 7/9/12.

  7. #7

    Default Re: Intra Ductal Papilloma

    thanks for sharing your story
    i can imagine how hard it was to have a surgery while ebf a 4 month old! and you had to relactate on one side furthermore..wow! but how was the recovery, was it slower because of the milk leaking?

    I think the doc's idea of weaning before surgery is because he didn't want to have drugs or anasthetic mixing with the milk, and he also considered that my ds is one year old so in a couple of months i might wean him off. i am supplementing with formula too because my milk supply is not enough. He is drinking about 5 to 7 oz each time and i can only manage to get about 2 to 4 oz each time i pump. and he drinks at least 3 bottles a day. it's rather heart breaking actually when i first had to buy formula again after a couple of months ebf..

    Now i don't want to think about the weaning plan, not so soon.. Eventhough i can only give him a bottle or two of ebm every day, at least he still gets the most nutritious food ever..

    The pain is not getting any better though, i am trying to distract myself away from it.
    My lil cookie monster arrived on 10 november 2009. Weight: 3.67 kg Length: 50cm.

    Mommy can't with machine but happily do it manually with hand :grin

    Lil cookie monster latest favourite menu:
    whole wheat bread for breakfast
    Oatmeal, dory fish and green veggies for lunch/dinner

  8. #8
    Join Date
    Mar 2010
    Location
    Northern Cal.
    Posts
    4,984

    Default Re: Intra Ductal Papilloma

    Anesthesia wears off really quickly, you shouldn't even have to pump and dump from that. I've had dental procedures, etc., and anesthesia is out of your system within an hour of the operation. So that is definitely not a reason to wean.

    I shared my story just in case you do want to nurse beyond a year and into toddlerhood. When your baby starts eating solid foods (for real, not just for fun), you may find your supply goes down, but you may still want to nurse a couple times a day because it's great to have that tool at your disposal, you know? So I just wanted to offer hope that you can have breast surgery, and continue to nurse. It's not a piece of cake, but it can be done, and I imagine it's easier to do with a toddler nursing than with a younger baby.

    Obviously, I probably would have had an easier time recovering from my biopsy if I hadn't been nursing. I did have issues with breastmilk leaking from the incision site, and that was a PITA. This doesn't happen to everyone, and it's way less likely to happen if your baby is older, and your supply is lower.

    But, even with my problems healing, I am SO glad I didn't just stop BF'ing! Healing probably did take longer because of the BF'ing, but it was worth the extra headache so that I can nurse my little bambino now!

    Just wanted to put this out there. I know so many doctors say, "Just wean! Your baby is X months/years old!" But that assumes you are on the same timetable that they are. If you don't want to wean, you may not have to. I found an excellent IBCLC who helped me through my surgery - she was 100% confident that I did not have to wean (after my doc told me I had no choice BUT to wean).

    So, like I said, you may have more options than you realize. If you're in pain, you might be able to remove the papilloma without giving up nursing. I can't make promises, but it might be worth a try. Chin up!


    You can call me JoMo!

    Mom to baby boy Joe, born 5/4/09 and breastfed for more than two and a half years, and baby girl Maggie, born 7/9/12.

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