Sorry, I just need to rant. I have just switched to feeding any supplementation using my SNS. Good result is that she's now taking less supplement...BUT I hate using it. Most of the time, she's just not getting anything as the tubing's not quite in her mouth right or it's become clamped again by accident or she pulls the tubing. Then when it does work right, she's so happy that she unlatches to smile at me and we go through the process again. By the time it's right, she falls asleep with exhaustion and then I put her down and she's still hungry. It hours to feed her and she's starting to get frustrated with the it. I wonder whether she's eating less because it's just too much hassle. Also, it means that I can't be away from her for more than 10 min. We can't go out much because I really don't want to use it in public. So here we are stuck and both getting frustrated....I would love to give a bottle right now!
I don't really expect any response but I just wanted a rant.