I have a 2 yr old with CP that I fought to nurse for almost 2 years. He never really had much of a drive to nurse, but I worked with an LC and pumped for 23 months. I felt like I always had to work so hard to get him to nurse. We would use his gastrostomy tube to make sure he received a sufficient amount of milk as he couldn't suck down enough on his own.
Now I have a 20 day old son and we are having awful problems. He was born at 37 weeks weighing 9lbs 10 oz. I had general anesthesia for my c-section and the poor little guy was zonked on drugs for the first day of his life. The next morning I finally got him to attempt to nurse and it was awesome but definitely not a wonderful latch. I was excited though because at least it was a start. That morning they put him in the NICU for a high bilirubin and I didn't get him back for 4 days. I begged the nurses to either cup, finger or gavage feed him. They refused! I gave them a breastflow bottle that our LC recommended to lessen the chance of nipple confusion. They refused. They used the little yellow nipple to feed him.
I have had him home for over two weeks now and he doesn't have a clue with what to do with my nipple. I have a wonderful milk supply because I have been pumping so much (50-55 oz per day). I have been working with an LC, but I'm not seeing any progress. She has me using a nipple shield along with a feeding tube to give him milk at the breast. He has learned to suck on the feeding tube and only take a little bit of the nipple into his mouth. She says that he needs to mature because some of his problem is related to him being born at 37 weeks. His due date is tomorrow.
This has gotten to be so much work and I am beginning to think that he will never learn to latch on to my breast and nurse like normal. Does anyone else have any experiences similar to this that they would like to share. I just want to be able to nurse this little guy like normal as he is my last baby. I don't know how much longer I can follow thru with all the pumping, weighing the baby, using the tube and nipple shield routine.
Praying for a miracle,