My baby had Down's. She nursed fine but was would get tired so I supplemented her with expressed milk in a bottle.
She had open heart surgery May 23. She developed chylothorax and was tube feed portagen for 2 weeks there. When I started to nipple feed her the portagen she would did great. Then about a two days later she started to cry and pull off the bottle. They did a swallow test and found she was aspirating a bit so they told me to add thickener.
She has since been able to get back on to breastmilk with the thickener.
I have tried to nurse her on her side with her chin tucked and still she chokes and cries.
Is there any hope that I will be able to nurse her again.
I am so depressed and sad.