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Thread: Thrush - about to give up

  1. #21
    Join Date
    May 2017
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    10

    Default Re: Thrush - about to give up

    Wow. We met with the IBCLC today, and she confirmed it doesn't look like we have thrush. Maybe we did at one point, but not anymore. Rather, after speaking with me, observing the baby's latch, examining my nipples, and (most importantly) examining his mouth, it looks like he has a tongue tie and an accompanying high palate! That explains our various "thrush" symptoms. White tongue? It doesn't lift up high enough for the roof of his mouth to clean off the milk proteins, so they build up. The Gentian Violet probably worked to remove the build-up because it's a powerful antiseptic that would remove pretty much anything, so that explains that. Sore/sensitive nipples and pain upon latch? Narrow latch due to the tie. Frequent "clicking" sound while nursing? Tongue tie. His weight gain has been fine, but I've had an oversupply since early on so it's likely he's getting enough milk without having to work for it. As for my nipples being red/pink in the crevices, she said that was just new skin/tissue forming as the nipples get stretched/pulled out during the breastfeeding process. They're akin to stretchmarks and normal, not a harbinger of thrush.

    She recommended that we have a pediatrician evaluate his tongue function to confirm and see if it requires treatment. In the meantime, a nipple shield might help me. She also recommended ways to get a deeper latch, and suggested preventive measures to ward off thrush going forward just in case (since I'm now plainly terrified of it). So, it's off to a specialist to get the possible tongue tie checked out and if necessary, clipped.

    If her assessment is correct (and it sounds quite plausible!), I cannot believe I spent THREE FREAKING MONTHS on a merry-go-round of purple-mouthed sterilization probiotic Diflucan topical anti-fungal HELL for a problem we DON'T EVEN HAVE. Good lord, if ever there was an example of the medical establishment failing someone. Ugh.

    I'm feeling hopeful now that it's possible there's an issue that can actually be resolved, as opposed to "thrush" which mysteriously doesn't respond to any known treatment. I'll certainly report back once the baby has been evaluated, if indeed the IBCLC turned out to be right.

    As always, thank you all for the support and suggestions.

  2. #22
    Join Date
    Nov 2012
    Location
    Ontario
    Posts
    723

    Default Re: Thrush - about to give up

    Sounds like you had a great experience with the IBCLC...I'm so glad that you seemed to get some good answers! Did she have recommendations for you for a specific pediatrician that is familiar with tongue ties? There are also many dentists who are skilled in releasing tongue ties -many will use laser, which is generally faster and tends to cause less bleeding. Also, be sure to have him evaluated for upper lip tie, as they tend to go hand in hand with the posterior tongue ties.

    Definitely keep us posted. I know it's so frustrating to think that you spent so long treating a problem that maybe no longer was there, but don't beat yourself up too much about it. Once you have that pain and go back and forth with getting it slightly better, I think it becomes really difficult to differentiate it from maybe a slightly different pain, and to be open to the possibility that it's not what you thought it was. If that makes sense lol. I'm just glad you've got a new lead and some new hope for a pain free breastfeeding experience!

  3. #23
    Join Date
    May 2017
    Posts
    10

    Default Re: Thrush - about to give up

    Quote Originally Posted by @llli*carm3 View Post
    Sounds like you had a great experience with the IBCLC...I'm so glad that you seemed to get some good answers! Did she have recommendations for you for a specific pediatrician that is familiar with tongue ties? There are also many dentists who are skilled in releasing tongue ties -many will use laser, which is generally faster and tends to cause less bleeding. Also, be sure to have him evaluated for upper lip tie, as they tend to go hand in hand with the posterior tongue ties.

    Definitely keep us posted. I know it's so frustrating to think that you spent so long treating a problem that maybe no longer was there, but don't beat yourself up too much about it. Once you have that pain and go back and forth with getting it slightly better, I think it becomes really difficult to differentiate it from maybe a slightly different pain, and to be open to the possibility that it's not what you thought it was. If that makes sense lol. I'm just glad you've got a new lead and some new hope for a pain free breastfeeding experience!
    She actually recommended a pediatrician who's also an IBCLC, which I'm super excited about. The pediatrician is currently on vacation, but her office recommended a specialist we can see in the meantime who can evaluate the baby and if necessary perform a revision. The appointment is on the 17th, so still a little time to wait.

    In the meantime, I've been focusing on helping the baby get a better latch, which had largely gone by the wayside in the fight against "thrush." He still clicks while feeding and eventually slides off the initial wide latch, but hopefully I'm at least instilling good habits in the event that there is a tie to be released.

    Between working on latch improvement and ceasing topical thrush treatments, which I suspect irritated my skin, my nipples are already feeling less sensitive. So things are looking up.

  4. #24
    Join Date
    Jun 2006
    Location
    COUGARTOWN Baby! From here on in!
    Posts
    17,625

    Default Re: Thrush - about to give up

    Clicking isn't a problem. It's often the coping mechinism of a baby dealing with Oversupply. And since you aren't having any pain-which you assumed was a result of being on diflucan but is probably because there is really no problem, I think I would just feed the baby. RELAX. I don't know that you were failed. It seems that you actually were rid of the thrush. They didn't allow you to medicate the baby for it. And you have been pain free for a while and your breastfeeding reationship continued. I wouldn't worry about the tongue tie honestly. It's not preventing your child getting milk and gaining weight and his latch isn't preventing your supply from meeting his needs. I wouldn't clip his tongue even if he has a tie. Because it's not needed for you to continue breastfeeding.

    Way too lazy for formula

  5. #25
    Join Date
    Nov 2012
    Location
    Ontario
    Posts
    723

    Default Re: Thrush - about to give up

    I'm glad to hear that things are looking up for you! Sometimes you just need to power through all the crap and the perceived crap, and things just kinda start to fall into place. Before you know it you're just going along and nursing like it ain't no thing! Good job, mama!

    I'll be interested to hear what the pediatrician/IBCLC has to say

  6. #26
    Join Date
    May 2017
    Posts
    10

    Default Re: Thrush - about to give up

    Checking in with one final update. Since the pediatrician/IBCLC was on vacation for the last several weeks, her office directed us to a specialist in pediatric dentistry. My son did indeed have a tongue tie! Not a particularly severe one, since he's gaining weight just fine (more than fine, really - 19 lbs at 4 months . . . my aching back!). But enough that it was causing my nipple pain/sensitivity and likely contributed to his high-arched palate, which also isn't super helpful for nursing comfortably. It's also why my nipple came out of his mouth looking creased 100% of the time, and why I always had the odd sensation that he was somehow licking the tip of my nipple while nursing, which was rather uncomfortable. So we had the tie corrected with a laser right there in the office a week and a half ago. I actually had increased nipple pain/sensitivity the first few days afterward as he was sorting out his new tongue mobility I suppose, but things have been improving since then and should continue to do so as he re-learns how to suck effectively and so on. His tongue continues to be white (again, high arched palate), but we continue to NOT have thrush, which I remain thrilled about. So we're forging ahead on our nursing journey here, with high hopes for the future!

    I want to thank you all so much for the support and helpful suggestions as we untangled this knot. Without this forum I likely would never have though to see an IBCLC and wouldn't have figured out what was going on, and may even have given up. I'm very grateful for everyone's help, and certainly intend to pay it forward if only by shouting from the rooftops whenever necessary that perhaps someone's case of invincible thrush might in fact be something else. If I can spare even one other mother the months of insanity and obsession I endured, it'll be worth it.

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