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Thread: Hormone Changes After Weaning

  1. #11
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    Jun 2014
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    Default Re: Hormone Changes After Weaning

    It has definitely been unpleasant. Back when my symptoms really started to get bad (but long before they were as bad as they are now) I went to that joint specialist and he did an ANA, a C-Reactive Protein and checked my SED rate. The ANA was negative, but in the notes below it is also said it was missing a vial. My CRP was 5.74 and the normal range is 0-3. My SED rate was also high at 25 with a normal range of 0-20. My WBC has bounced around from the high end of normal to a bit above normal the whole time also. And even with showing all the inflammation, no one has wanted to look any further into the cause. They just tell me to take ibuprofen. And if the joint pain was the only problem, that's probably what I would do, but it's the least worrisome of the lot.

    Thanks for the link, zaynethepain. I'll look into it. Part of my biggest problem lately is I'm just too tired to do anything, including research any more. I get up, I hand my kids a pop tart or a granola bar instead of the hot breakfast I used to make every day and I go back to sleep on the couch the best I can while they watch tv. And I lay there all day, in pain, exhausted and miserable. Just walking is so painful any more that I just have my husband doing our grocery shopping and doing the laundry, and the dishes, and the vacuuming and anything else you can think of. I am completely useless.

    My appointment is Friday and I have another one with someone else next Friday. I'll let you guys know. Thanks for the support

  2. #12
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    Jan 2013
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    Default Re: Hormone Changes After Weaning

    Have you seen a rheumatologist? Those inflammatory marker elevations would definitely make me want to seek out their opinion.

    Hang in there. My own mother had a very similar experience about a decade ago, with many of her doctors initially brushing her off as being anxious or depressed. It took two years and a good rheumatologist who was actually willing to push for the answers to get her autoimmune diagnosis!
    Apologies for the short responses! I'm usually responding one-handed on my smartphone!

  3. #13
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    Jun 2014
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    Default Re: Hormone Changes After Weaning

    sonogirl, I actually did see a joint specialist. He's the one that ran the check for the inflammation, but he wasn't very friendly and told me my breastfeeding was probably the reason for the inflammation in my blood and he wasn't worried about the pain I was in. He wrote me a prescription for some anti-inflammatories and that was the end of it. He did run an ANA to check for autoimmune diseases and it came back negative, so I'm not really sure. I would like to run that again, though. I have a list of tests I'm going to request tomorrow, since it seems you have find answers on your own these days.

    I'm hoping if the OBGYN I'm seeing tomorrow can't give me any answers she'll at least be able to refer me to a DECENT doctor. Many of the ones here are just plain rude.

  4. #14
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    Oct 2012
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    Default Re: Hormone Changes After Weaning

    This is ridiculous:

    Quote Originally Posted by @llli*pandamarie View Post
    my breastfeeding was probably the reason for the inflammation in my blood
    FYI, there's a lot more to blood work for autoimmune disease than an ANA. I don't know whether more blood work is indicated or not, I can't make that call, but I just don't want you to think that autoimmune is not a possibility simply because the ANA was negative.

  5. #15
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    Jun 2014
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    Default Re: Hormone Changes After Weaning

    Quote Originally Posted by @llli*bfwmomof3 View Post
    This is ridiculous:



    FYI, there's a lot more to blood work for autoimmune disease than an ANA. I don't know whether more blood work is indicated or not, I can't make that call, but I just don't want you to think that autoimmune is not a possibility simply because the ANA was negative.
    I thought it was too :/ I was really upset when I left his office. When I told him ALL my joints hurt he laughed and told me he didn't have time for that and asked which one was the worst. I didn't expect him to look at all my joints individually, obviously. I did, however, expect him to assume there was something all over going on and not just do x-rays of my knees and say they look fine.

    I've had full blood work ups done, but other than my SED rate and CRP being a little high and my white count always being at the high end of normal everything has been fine. I knew that you could still have an autoimmune disease with a negative ANA, but I don't really know which ones. I have no medical background and only know what I've researched in the past several months dealing with this. I just know lupus and arthritis are unlikely with negative ANA.

    Are there any you know of that would present with my symptoms and show negative ANA?

  6. #16
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    Jan 2013
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    Default Re: Hormone Changes After Weaning

    None of us here can give medical advice, but I would suggest perhaps finding a different rheumatologist, one who is willing to actually do the work to figure out what is going on, rather than write off your problems as breastfeeding related!

    Again, for what it's worth--my mom was also negative ANA. Her blood work also reflected a very elevated SED rate, elevated CRP, elevated white count, and low red count. As an aside, she has Still's Disease, and her other physical conglomeration of symptoms are a bit different from yours, so I wouldn't be suggesting that's what you have. I'm just sharing this information because it's a very rare autoimmune disease, and it took a very long time for my mom to find someone who was willing to do the work to figure out what was wrong with her. Anyway, all I am trying to say is that bfwmomof3 is right, there is a lot more to diagnosing autoimmune disorders than just the ANA, and a good rheumatologist should ideally be helping to investigate the other options!
    Apologies for the short responses! I'm usually responding one-handed on my smartphone!

  7. #17
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    Oct 2012
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    Default Re: Hormone Changes After Weaning

    Quote Originally Posted by @llli*pandamarie View Post
    When I told him ALL my joints hurt he laughed and told me he didn't have time for that and asked which one was the worst.
    Honestly this makes my jaw drop. I have known some outstanding rheumatologists and they are people who WILL look at every joint. Because a big part of rheumatology is DOING a physical exam, figuring out which joints are affected, how many and how severely. To be a good rheumatologist you have to do a good history and physical, the labs are complementary. Personally if someone said something like that to me I would not see that person again unless the next available person is a thousand miles away.

  8. #18
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    Jun 2014
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    Default Re: Hormone Changes After Weaning

    Quote Originally Posted by @llli*bfwmomof3 View Post
    Honestly this makes my jaw drop. I have known some outstanding rheumatologists and they are people who WILL look at every joint. Because a big part of rheumatology is DOING a physical exam, figuring out which joints are affected, how many and how severely. To be a good rheumatologist you have to do a good history and physical, the labs are complementary. Personally if someone said something like that to me I would not see that person again unless the next available person is a thousand miles away.
    I have not been back to him and never will because he was so rude. I also switched OBGYN's because of this and my last OB delivered both my boys and saw me my entire pregnancies.

    I did go to my new OB today and I feel so relieved. When she walked in the door she had already looked over my labs and wasn't looking at everything, confused in front of me. She said my labs did NOT look normal to her and she believes I have PCOS. My FSH to LH ratio is about 2.5:1 and I knew that was an indicator for PCOS, but the labs weren't done on the standard 3rd day of my cycle, so I didn't know if it was still relevant. But she also wants to do another ANA and wants to check my inflammation levels and thyroid again, as well as checking for insulin resistance. She scheduled an echo for my palpitations and wants me to wear a 24 hour heart monitor. She also scheduled another ultrasound for my ovaries. I didn't even have to ask for any of the tests I had a list of because she said she wanted to run them before I had a chance to ask!

    She is the first doctor I have been to that hasn't mentioned depression. I am so relieved. I'm going in for my blood tests on Sunday morning and will hopefully have results within a couple days, then I have the heart echo next week and the ovarian ultrasound the following week.

  9. #19
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    Oct 2012
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    Default Re: Hormone Changes After Weaning

    So glad to hear you have found someone good!

  10. #20
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    Feb 2013
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    79

    Default Re: Hormone Changes After Weaning

    With the joint symptoms and palpitations, I'd also consider Lyme if you're in an area where it's common.

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