Hi ladies. I apologize in advance if this gets long. I breastfed my first son for over three years. When he was tiny we suspected thrush, but after treatment that didn't help much, we landed at vasospasms/Reynaulds. I was able to keep it under control with Niacin.
Our second little guy was born April 19 via c-section (incomplete breech and many unsuccessful tries to get him to turn). We had no problems nursing for the first few weeks. He was latched on while I was still on the operating table. As time went on I started cracking and experiencing a lot of pain during the latch and with each suck. The vasospasms had also started again and I began taking Niacin. Thursday morning, May 16 I was engorged and used a manual pump and pumped out blood (it was all red...didn't look like blood mixed with milk). I met with an IBLC that afternoon and she found tongue tie. The next Monday I got it clipped, but by then I was in pretty intense pain. That night things felt a little better, but there was not a significant improvement.
By Wednesday my nipples were flaking and burning (in addition to the extreme cracking/bleeding/blisters horror we were already dealing with). I called the IBLC about thrush. We met and she confirmed my suspicions (flaking and shiny nipples/white in baby's mouth). She felt like the tongue tie had led to shallow latch which had led to the cracks which had led to the thrush having a place to thrive in. That day the on-call OB called in a 150mg Diflucan (mine was out of town). I also started taking grapefruit seed extract and acidophilus. Thursday night I felt some improvement, but by Friday it was burning again.
The OB called in another 150mg RX and the pediatrician called in oral meds for the baby. I had no improvement and made an appointment with my OB Wednesday. She felt confident we were dealing with a bad case of thrush and wrote four 150mg doses to be taken every other day for the next week and suggested a full panel of probiotics.
Over the week things improved significantly. (I was also using polysporin on the cracks and nystatin ointment). Last Tuesday I took the last dose and thought we were in the clear thrush-wise. I was only experiencing vasospasm pain. (When the AC kicks on, fan is on, after shower, after nursing, the nipple changes color and the pain is in the nipple and directly behind the nipple vs in the whole breast and down the sides like I was experiencing the prior weeks. The Niacin does not seem to be helping this time around.). Last Friday morning there was flaking and pain again. I called the OB (again) and she said if I had felt improvement (I definitely had) that she would call in another week. If I hadn't she said she wasn't sure I should continue trying the diflucan.
This week I have seen improvement again and am only experiencing the vasospasm pain. It is tolerable. I am no longer screaming, cussing, bawling, hitting the bed while he nurses. I'm not (as) worried that I won't be able to do this long term, but I am still concerned about the thrush coming back again after my last dose tomorrow. I'm so VERY beat down by the washing everything in vinegar, boiling pacifiers, taking a zillino different pills, giving him med, and using multiple ointments.
So I guess I'm wondering if anyone else has been in this predicament. How long can I take diflucan? Is there something I'm missing in regards to thrush treatment? If the Niacin hasn't worked for the vasospasms should I try something else? (I read about calcium/magnesium and also a rx?) The IBLC is recommending I go to a dermatologist, but I'm not sure what they would/could do?
Thanks for sharing your experience/advice if you made it to the end of this novel.