Hi there, I'm new to this! My son Will has Down syndrome, he was born @34wks +2. He's being tube fed (ng tube) EBM and before has a go on the breast. He's managing to suck a bit but gets v little milk and he doesn't get much other than my nipple in his mouth (he doesn't open his mouth v wide). He doesn't have a good latch either. Some days are better than others but even after an hour on the breast with what looks like a decent mouthful of breast he still managed to tolerate a full top up of milk by tube which I would of thought he'd be sick if he'd got some breastmilk?. (Think he catches the drips when I'm on let down!!)
He's 10wks old (4wks corrected) and 5lbs 7oz. Slowly gaining weight.
I hate the nasal gastric tube although appreciate a necessary thing for now.
Am at the end of my tether don't know whether to give up and try bottle feeding him or to persevere with breastfeeding?
Don't want the tube to have any long term damaging effects? Am I being ridiculous?
Please please any advice from mums with experience of this would be amazing.
I've not tried nipple shields, should I? Not tried him with a bottle either.
I'm keen to try a bottle so he no longer needs the tube but would also like to keep breastfeeding and I'm worried using a bottle will confuse him. ???
Any advice greatly appreciated thank you xxx