Baby was born scheduled C-section on 5/21/12. 7lb 10oz. She initially lost about 15% of her body weight and had some issues, but then she was gaining fine and was around 20% in weight on the charts. Then she had some issues with weight, then she was fine...it's been a back and forth game with the pediatrician.
She's exclusively breastfed and seems completely satisfied after every feeding. She laughs, she smiles, she's advanced developmentally. She's my third baby and certainly the happiest I've had. The problem: she spits up excessive, ridiculous amounts.
Her GI is extremely concerned with her weight. Not only is her weight small but she's stopped growing in height completely. The GI said that next her head will stop growing and will cause mental retardation. At 7 months today, she is 12lbs 5oz. I think she's .4% on the weight chart. The GI doctor has her on 3 reflux medicines and can't stop the reflux. She had an Upper GI and sonogram that showed reflux. Tuesday she had an endoscopy with multiple biopsies to see if she has some sort of malabsorption problem like her brother. 3 weeks ago we started feeding her an ENTIRE avocado per day in addition to all her nursing sessions and it did nothing for her weight.
The GI doesn't want me to stop nursing because the baby is so happy and developing so well. Most "Failure to Thrive" babies have severe developmental problems and delays but my baby is doing great and she's never been sick. At the same time, we have GOT to get more nutrition into her. She nurses and then just spits up 10 times and all her milk is on the blanket! The doctor said that, ideally, we'd stop the spitting up but because she hasn't been able to do that, even on the strongest medicatinos available, we have to make sure that what DOES stay down is higher-calorie.
So, the GI's plan is for me to nurse all she wants and then give her 2 ounces of breastmilk mixed with an elemental formula (that would be double the calories in the same volume). How do I do that, though? Do I nurse all she wants and then pump? Because then she wouldn't be getting the cream. We've tried it several times since her doctor appointment and she doesn't want it, either. She's full! And I hate wasting breastmilk! She just spits up more. How do I keep my supply up while providing her the nutrition and calories she needs? How do I work the logistics of nursing all the baby wants AND pumping? (I have freezer milk I can use, I'm just trying to figure out how to make this work long-term....since it's coming to that). We're really close to having a feeding tube.
Edited to add - I did all the standard things you do with a baby with reflux. We sleep her at an incline. I removed dairy, soy, gluten from my diet. We burp her well. We took her to a chiropractor. None of that helped.