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Thread: Update to Poor Lip Seal/Weak Suck

  1. #1
    Join Date
    Aug 2010
    Location
    Texas, USA
    Posts
    50

    Default Update to Poor Lip Seal/Weak Suck

    Well we are still pushing on. Way back at 6 weeks we were diagnosed through an IBCL with the poor lip seal and weak suck. We have fought thrush, cracked nipples, and reflux.
    Finally today, my daughter was accepted into the ECI program for occupational therapy. They said all the muscles around her mouth are uncoordinated and weak. Her palate is wide and high and her tounge is thick and uncoordinated causing her to rub the nipple when she eats. Basicly they told me she has little control over the muscles surrounding her mouth.
    They made me feel pretty good about what I have been doing though because they told me they didn't know how she had gained any weight at all.
    Now we have some hope of improvement as well as much needed support.

  2. #2
    Join Date
    May 2006
    Posts
    21,175

    Default Re: Update to Poor Lip Seal/Weak Suck

    So glad to hear you're getting knowledgeable help! I hope things improve a lot, and ASAP.
    Coolest thing my big girl said recently: "How can you tell the world is moving when you are standing on it?"
    Coolest thing my little girl sang recently: "I love dat one-two pupples!"

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