Hi Mama's, I'm new here.
It's been a long road for myself and my DD. I delivered at 35w6days - She is almost 11 weeks now and we have endured two frenotomys, one at three days old and one last week for a posterior tongue tie, jaundice, poor/weak suckling, retained placenta, uterine infection, and some very misguided advice in the beginning!
But, through blood, sweat and tears (all three quite literally) I have persevered and now we're in a pretty good place. I am taking domperidone and I am using a medela sns system, when I can get LO to latch with the tube in the way.
LO gets very frustrated when I use the SNS, she screams, tears at the tubing, cries when I try to latch her. It's very unpleasant for both of us. When I do finally get her latched I don't dare try to switch breasts as I don't want to go through it again. When it's really rough, I give up and give her a bottle - I don't want breastfeeding to be something she associates with stress and frustration. I think most of the frustration stems from tube positioning and having to fiddle with it constantly to get it to work. Does anyone have any tips to make it easier for me and DD to use the sns?
DD's supplementation is all over the place right now - and even more up and down when we do use the sns more. I'm not sure how to wean her off - should I just let her self wean? She is pretty good at refusing the bottle if she doesn't want it and I make sure to give her plenty of breaks to pace the feed and allow her the chance to signal she's full during a feed. I'm just not sure if this will be effective in getting her right off the formula. I've read the page on kellymom about reducing the supplement amounts slowly, but since DD often doesn't take the full amount we offer (sometimes takes none, sometimes takes all, depends on the feeding) reducing what we offer won't help.
Also, any tips to stop stressing about intake when she refuses a bottle or doesn't finish one? I'm having a very hard time letting go of the visible numbers that I get with the bottle. I find it quite stressful to not know how much she's taken in now.
Thank you, and sorry for the novel!


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1-15-06
and
for Gavin, born with an incomplete cleft lip and incomplete posterior cleft palate 
