My son was born at 28 weeks and spent 3 months in the NICU. When he came home I tried to breastfeed but he wasn't making enough diapers, so I had to supplement. I went to an IBCLC who diagnosed him with channel palette from intubation at birth. Right now I am nursing with a shield, supplementing with a SNS or bottles, and pumping when I can to try and maintain my supply. Is there any hope of exclusively breastfeeding with his channel palette or will I always have to supplement?
Re: Channel palette
I can't find a whole lot about channel palate, but I get what you are saying. My fourth baby was born with a cleft lip and palate, making him unable to nurse. I pumped and fed with a special cleft feeder, a nipple shield and an SNS, giving him practice at nursing, until he fought me about it, and I used a cleft feeder until after his surgery. Now he can use a Breastflow bottle, but he is refusing to nurse.
Is your LO going to need surgery for this? Or does it grow normally over time? Either way, practice may may perfect.
I would suggest that you pump as much as possible with a hospital grade pump, as a robust supply will make it easier for your LO to nurse. If you decide to feed with a feeder or bottle, use the finish at the breast method, so baby is used to "nursing" even if it is with an SNS and nipple shield. I wish I had kept up with that; he won't nurse at all now :( and that is such a source of grief for me.